Be THANKFUL. Always.

Well, hello everyone! I did something today I've put off for awhile. I joined a TBI (Traumatic Brain Injury) Caregiver Support Group. I'm not entirely sure why I was hesitant to join up until now. I guess subconsciously it made Zane's brain injury that much more REAL. I knew I wasn't alone and that there are others who have similar situations, but it has been emotional reading about other people unable to communicate with their loved ones and the stories will just break your heart. I couldn't spend much time there. It was all so emotional. But I know I'll find help there and I will continue to take part. I haven't shared Zane's story yet there, but when I do, I will undoubtedly get some sage advice from those doing this longer than I have.

This week, as we all give thanks on Thanksgiving, I give thanks for every single day I get with Zane and won't take a single one for granted. I also pledge to make each one special in some small way when there aren't big moments. Zane said something poignant when we got to St. Jude and he saw all these young babies and children with cancer being taken around the hospital in little red wagons. He said "At least I had 20 good years. These kids won't ever know life before being sick." I fell apart and I'm falling apart typing it now. But what a thing to say! He had just been diagnosed with brain cancer and was still in a wheelchair. My sweet, gentle soul of a child, who will always be my baby.

When this pandemic is over, I'll be getting a brain tattoo in honor of Zane. Zachariah got his when Zane got his diagnosis last November (see pic). I've got a drawing by Deborah Von Meding that struck me and I will work out a final piece which Zane's name will be incorporated into.

Hug your loved ones. Each day is a gift. Be thankful always. #MakeZaneBetter